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IMMEDIATE RELEASE

Release No: 514-96
September 04, 1996

DOD COMPREHENSIVE CLINICAL EVALUATION PROGRAM DATABASE AVAILABLE FOR INDEPENDENT SCIENTIFIC INVESTIGATION

Today the Department of Defense announced that the data set for the Comprehensive Clinical Evaluation Program is available to qualified scientific researchers. Established in 1994 by DoD Health Affairs, the CCEP was instituted to provide a standardized method of assessing health concerns of active duty Persian Gulf War veterans and their families. In addition to providing medical care, the program is also designed to develop an understanding of the nature of their symptoms.

The DoD CCEP data set contains health information on those individuals who volunteered to participate and were eligible for DoD health benefits. The data set is in a database format that facilitates identifying trends or patterns of symptoms/diagnoses among participants. The characteristics of the data set include:

No personal identifiers. All privacy act data has been

removed from the database to ensure the privacy of all

participants

Information on more than 22,000 self-selected individuals

who have completed their evaluations

Nearly 4.9 million data elements

Information concerning demographics, self-reported

exposures, self-reported symptoms, and diagnostic codes

Computer Requirements: at least 20MB of available hard

drive; PKUNZIP Program; and a database that reads .DBF

files

A registration and review process is required before the CCEP data set can be released to a researcher. Researchers who wish to request an application package for the CCEP database should contact the Defense Technical Information Center at (703) 767-8271. The price of the database is $25. DTIC will provide the appropriate request form. In addition to the form, investigators are strongly encouraged to submit an Institutional Review Board approved, scientific protocol. Any properly constituted IRB will suffice. A properly constituted IRB has the ability to review, comment, approve, require modifications (in order to obtain approval), and disapprove research protocols. Questions concerning the CCEP database may be addressed to the Deployment Surveillance Team at (703) 681-7812/13.

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